Time to do a little re cap of this summer.
Lucy was blessed last month and it was wonderful. Lucas gave an amazing blessing, I was sobbing through it. Lucy looked gorgeous in her dress, we took pictures but Lucas still needs to edit them. I will post once they are finished. I was greatful for that day and everyone who came.
The last couple of months were rough for me, I was praying for a way to get motivation again. And guess what? I found it...
I tried these awesome skinny wraps that are simply amazing really. And then I decided to let others know about it. I have missed teaching and making a difference in people's lives. And I have found that. I honestly don't think it was a coincidence that this just happened. It was an answer to my prayers. To have people you care about feel better including yourself, is honestly a wonderful feeling. I just ordered some other products and can't wait to try them out as well. Seriously am so excited about this and love these magic wraps.
Lucy has hypsarrythmia again and the spasms are there too. Totally a bummer.. When I first found out I just had to shrug my shoulders and say to myself that's life I guess. Our Neurologist we had before described it like you are in a Coma. That is completely horrible.. I do know when Lucy has glimpses of awakening. She is in there, and I can see it when it happens. Like the time she was in the tub and looked right at me and was laughing and smiling for a good 3 minutes or so. I sob while I write this, because it's wonderful when those moments happen. But, it's heart breaking knowing my daughter is in a coma like state most of the time. Dr. Sweeny asked me if she responded to steroids the first time. He is our new neurologist, since our other left to another hospital. I think he assumed that it didn't and it was just her chromosome issue causing her to be non responsive. When I told him she acted different on steroids he acted more hopeful. He said then we are going to try again since she responded so well the first time.
Lucy will turn a year old on the 27th. I was wondering on what to do for her Birthday. But, I knew the answer. She will get her Birthday cake and ice cream just like any child would. She may have a frail body, but she deserves to have her special day the same way. I will just be her arms and her hands to help her.
Thanks for those of you that have prayed and fasted on her behalf. She needs those prayers constantly. Pray her Hypsarrythmia goes away this time.
