Monday, April 25, 2016

Adventures in Lucy town

Well, I clearly suck at blogging. I figure now is a good time to post.
Lucy is sick and her heart rate hasn been higher than it should. I wondered if it had to do with the meds we are weaning her from or what? She does have Adenovirus, but I've never seen a virus give her this issue for over a week. The theory of her being dehydrated while being sick is what the doctors think. Her iv is helping I've noticed. I'm home tonight while Lucas stays over night. It's hard not to be there, but I need to be with Hewson still for feeds. Plus I'm attached he's attached and I am not ready to be gone from my baby over night unless I really have to. She has family and daddy with her tonight so it's ok. I really demand control over everything with her. I have been in constant contact with what's going on. So today we did an EEG on her to see if that has any clues. Um so who walks in? Her old neuro! I thought I time traveled to the dark place in December 2011 when he first walked in our room for seizures. Yeah... So, I don't care for him. He left the hospital and I guess now comes every now and then to help. He couldn't even remember her at first. He was her neuro for almost 2 years. I feel like I sassed at him telling him he better remember who she is. What a dork! He did end up remembering her, but I think he's still a dork.  You know what's funny? The ER is so weird about parents giving routin meds. I finally convinced them. I brought them with me and showed them. They forgot to order them, so I said I am going to do it. They let me, but sent in a pharmacist to look at what I gave. Are you seriously kidding me? Yeah, um dumb. See I always get annoyed!
The good thing is that Lucy was placed in red category at the ER. Meaning she gets to move to the front of the line. That really was nice considering a lot of people came today.
Something I never really thought about is this. I guess a lot of teenagers came in I don't know the times.  I guess they are depressed and suicidal. So they were being checked in the ER. That also breaks my heart. I wish people were happy, but this life can be hard and body composition, hormones, you never know what's going on with someone.

That's it for today, thanks for reading.