I was given the opportunity to go see Celine Dion in Vegas with my friend and her sister and mother. We had a great time chatting, watching a drunk guy at the bar that was embarrassing himself. He also resemble my Dentist which now I am worried it was my Dentist... And at the end of it all we went to see the concert. It was very different from her other shows, it seemed sort of random. And then Nudity was thrown in there, so not needed. I think Celine is amazing, but that concert wasn't like the others. I still had fun though, and am super glad I was able to have a mini getaway and be surrounded by a great family and watch my favorite singer perform.
Right before the getaway Lucas went to Brazil for work. He had a great time, and brought back lots of treats. Luckily, I didn't think any of them were good so I haven't eaten much of it. Lucas had a great group of guys from work he went with. He thinks highly of them and I always hear great things about them. Glad he enjoyed his time while he was out there.
Lucy is on new medication now along with her medicine from before. She takes Topamax along with Phenobarbital. She takes the Topamax twice a day and the Pheno once a day. I put the Topamax on baby food for her to eat since it doesn't dissolve. I am lucky to have her eat orally, that isn't usally the case with these little ones. Any time I tell the specialists she doesn't really take a bottle too much, but she eats baby food they are surprised. A lot of it based on the fact that she has problems seeing. I guess it's hard for children to want to eat when they have a visual impairement. We work constantly with her eyes to help her see.
Appointments have become too much for me, but I do it anyway because that is what Lucy needs. I frankly am sick of talking about what is wrong with Lucy with the specialists/ or with those I don't know. I don't mind talking about it don't get me wrong, it's just when I get loads of questions constantly in a short period it takes a toll. And I wish so badly I could take a break from these appointments to ease the chit chat of what is wrong. List of appointmenst are: 3 times a month eye specialist, Once a month Special Needs Specialist, Once a month Nurse, Twice a month Physical Therapist, Twice a month Occupational Therapist, and at least once or maybe twice a month a visit to Primary's or somewhere else concerning Lucy. Luckily all of my Early Intervention/Eye services are at my home. I feel overwhelmed at times, just trying to remember all the exercises I need to do is hard. I try to remember them all, but sometimes I don't.
I am feeling the itch to go camping, luckily they have handy little fire pits to buy these days. Lucas bought one over the weekend and I am eager to try it out. It helps me feel like I am camping a little bit, even if I'm not.
I have days I feel so alone and depressed. Don't feel guilty, I just sometimes feel sad like we all do sometimes. Lucas takes on a lot of projects to help us with money or mostly just out of the kindess of his heart for family or friends. I admit the last couple of months he has been working a little more than I am used to or feel I can handle. Hopefully he will take a break soon :(.
Lastly, I would like to say to Julie Decoria how much you inspire me. Julie was in the Jenny Phillips fireside group with me. We traveled to New Zealand and Western Samoa one summer to perform and thats how we met each other. Julie has a sweet little Daughter that is Dawson's age. She has a Deletion of the 13th chromosome. She writes a beautiful blog, which inspires me everytime I read it. She knows what's I am going through and I feel her pain and she feels mine. It's nice to not feel alone in this. Thank you Julie, Thank you.
Lucy is on new medication now along with her medicine from before. She takes Topamax along with Phenobarbital. She takes the Topamax twice a day and the Pheno once a day. I put the Topamax on baby food for her to eat since it doesn't dissolve. I am lucky to have her eat orally, that isn't usally the case with these little ones. Any time I tell the specialists she doesn't really take a bottle too much, but she eats baby food they are surprised. A lot of it based on the fact that she has problems seeing. I guess it's hard for children to want to eat when they have a visual impairement. We work constantly with her eyes to help her see.
Appointments have become too much for me, but I do it anyway because that is what Lucy needs. I frankly am sick of talking about what is wrong with Lucy with the specialists/ or with those I don't know. I don't mind talking about it don't get me wrong, it's just when I get loads of questions constantly in a short period it takes a toll. And I wish so badly I could take a break from these appointments to ease the chit chat of what is wrong. List of appointmenst are: 3 times a month eye specialist, Once a month Special Needs Specialist, Once a month Nurse, Twice a month Physical Therapist, Twice a month Occupational Therapist, and at least once or maybe twice a month a visit to Primary's or somewhere else concerning Lucy. Luckily all of my Early Intervention/Eye services are at my home. I feel overwhelmed at times, just trying to remember all the exercises I need to do is hard. I try to remember them all, but sometimes I don't.
I am feeling the itch to go camping, luckily they have handy little fire pits to buy these days. Lucas bought one over the weekend and I am eager to try it out. It helps me feel like I am camping a little bit, even if I'm not.
I have days I feel so alone and depressed. Don't feel guilty, I just sometimes feel sad like we all do sometimes. Lucas takes on a lot of projects to help us with money or mostly just out of the kindess of his heart for family or friends. I admit the last couple of months he has been working a little more than I am used to or feel I can handle. Hopefully he will take a break soon :(.
Lastly, I would like to say to Julie Decoria how much you inspire me. Julie was in the Jenny Phillips fireside group with me. We traveled to New Zealand and Western Samoa one summer to perform and thats how we met each other. Julie has a sweet little Daughter that is Dawson's age. She has a Deletion of the 13th chromosome. She writes a beautiful blog, which inspires me everytime I read it. She knows what's I am going through and I feel her pain and she feels mine. It's nice to not feel alone in this. Thank you Julie, Thank you.
No comments:
Post a Comment